Need for greater awareness and support amid rising autism cases

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KUCHING: As the world observes World Autism Day on April 2, the number of individuals diagnosed with Autism Spectrum Disorder (ASD) continues to rise, and Malaysia is no exception.

A study found that the prevalence of ASD among school-age children rose from 6.34 per 1,000 in 2018 to 9.29 per 1,000 in 2022.

Despite growing awareness, challenges remain for autistic individuals and their families, especially in rural areas.

Recognising autism as a form of neurodiversity underscores that neurological differences are a natural and valuable aspect of human diversity.

Associate Professors from Taylor’s University Dr Chee Seok Chiong, Dr Neoh Siew Hong and Dr Lim Yin Sear stated that children with autism often face delays in speech, limited eye contact and difficulty with imaginative play.

“Sensory sensitivities can make environments with bright lights or loud noises overwhelming.

“Early intervention remains critical to enhancing communication and developmental milestones,” they said.

They added that although inclusive education efforts are gaining momentum, many schools in Sarawak lack trained educators and resources.

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“The 2025 Sarawak Budget includes commitments to improve educational support for autistic students, aiming to bridge these gaps.

“Inclusive education through Individualised Education Plans (IEPs) and teacher training is essential to ensure that students with autism receive equitable learning opportunities. However, rural schools remain disproportionately under-resourced.”

Teenagers with autism often face increased social and academic pressures, with the lack of specialised career guidance further complicates their transition into higher education and employment.

“For autistic adults, securing employment and achieving independent living remain challenging due to limited workplace accommodations and support services.

“We stress the need for career pathways that align with the strengths of neurodivergent individuals.”
The experts also stated that parents and caregivers often shoulder significant emotional and financial burdens.

“In Malaysia, the annual cost of therapies and specialised care can reach RM35,365 per child. Additionally, caregivers may experience social isolation and mental health challenges while advocating for their children’s needs.”

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Sarawak has seen progress through the efforts of organisations such as the National Autism Society of Malaysia (NASOM), IDEAS Autism Centre and the National Autism Resource Centre (NARC).

“These groups provide early intervention, educational support and advocacy.”

Employers can contribute by fostering inclusive workplaces, offering flexible roles and providing necessary accommodations and similarly, creating sensory-friendly public spaces and organising community awareness programmes can reduce stigma and promote inclusion.

“World Autism Awareness Day serves as a reminder of the importance of acceptance and support.

“By working together, communities, policymakers and organisations can create an environment where autistic individuals in Sarawak can thrive, contribute and lead fulfilling lives.

“Efforts to promote inclusive education, expand support services and encourage public understanding are vital steps toward building a truly inclusive society,” the experts added.

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